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Published 07-25-2012 in News , last update 01-09-2014 Visit
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9th G-I-N conference

The conference will take place in Berlin on Aug 22, 2012 to Aug 25, 2012.
For more information visit the website.

Published 07-25-2012 in News , last update 07-25-2012 More...



July 9-11, 2012 - Summer School Clinical practice guidelines on rare diseases

 The official language will be English.
Confirmation of admittance will be sent by email on June 19, 2012.

This course will take the participants through the development process for clinical practice guidelines. It does this by providing the basics of clinical practice guideline and evidence synthesis approaches.

The course will cover the following topics:
• Identify key clinical issues to be included (scope)
• Develop review questions using PICO and PIPOH and planning the systematic review
• Identifying the evidence: formulating, executing and documenting a search strategy
• Assessing quality of relevant studies, summarize and interpreting the body of evidence to make...

Published 11-17-2011 in News , last update 06-06-2012 More...



23rd - 24th February - Workshop "Clinical practice guidelines on rare diseases"

 CNMR-ISS is organizing a workshop aimed at sharing experiences and knowledge on methodological issues concerning the development of clinical practice recommendations on rare diseases.

Role of clinical practice guidelines on rare diseases in informing and shaping organization of care models within a health care system will be also debated.

The workshop gathers participants from experienced organizations and institutions in systematic reviews and guidelines production as well as patients associations and policy makers at national and European level.

The workshop will take place in Rome, Istituto Superiore di Sanità on 23rd -24th February 2012.

Published 11-17-2011 in News , last update 02-09-2012 More...



Alternating hemiplegia

 The alternating hemiplegia (AHC) is a rare neurological disorder characterized by recurrent hemiplegic attacks involving one side or both sides of the body.

The hemiplegic attacks can vary from a simple weakness to a complete loss of movement and sensitivity. They can last minutes, hours, days or weeks and they usually disappear during sleep.

Children with AHC show a wide range of symptoms in addition to those typical of the disorder: hypotonic attacks (lack of muscle tone), dystonic posture (stiffening of the extremities), nystagmus and other oculomotor abnormalities as well as seizures and mental retardation.

These neurological manifestations are not common to all of the children with AHC and currently there is no evidence that they are actually...

Published 05-26-2011 in Guidelines published by CNMR , last update 07-27-2011 More...


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